I'm still here.
Let's see, what's happening.
I've continued to get botox. After the initial 3 rounds, my neuro asked if i was seeing 50% relief. I laughed and said no way, maybe 10%? He was disappointed by that and suggested we quit the botox and try something else. I thought about it for a few days and decided to ask to continue it. I may be only seeing 10% improvement but that's 10% more than I've seen from anything else other than cannabis, and that breakthrough was 12 years ago. I'm having less scalp allodynia in specifically the spots he's been injecting, so I've also asked him to focus on my remaining hot spots for the next round. I've had no negative side effects beyond fatigue and flu-like symptoms the next day.
I've got school for another month or so, I'm taking a film class and I love it.
I have been neglectful in my exercise posts, but this is about how it's gone for the last 6-9 months. So much fatigue, and not much hiking.
I've been having pain in my toes and hands, got an xray on my thumbs but nothing showed up.
I'm constipated a lot, and I'm pretty sure it's from eating flour, in any form. My diet is already so restricted, I'm having trouble accepting this.
I continue to attempt to garden. There are just so many critters up here I don't know if I'll even try a veggie garden this summer, but certain herbs are doing well, and I'm slowly filling up my kitchen with succulents and houseplants I keep propagating.
And, my head. My head remains what it is: an albatross, a constant reminder of human limitations, and my biggest obstacle and enemy. Nothing's really changed, as the same symptoms wax and wane with predictable unpredictability. The botox has changed some sensations though, so there's always hope. Right? Right.
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Saturday, May 11, 2019
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